Scales and Scores

The section of Scales and Scores provides a database of validated scores and scales used in neurology in English and other languages on the EAN website. It provides clinicians and researchers in the field of neurology access to the most commonly available and validated scales and scores.

Scales

 

SCOPA-AUT

Assessment of autonomic dysfunction in Parkinson's disease: the SCOPA-AUT. Visser M1, Marinus J, Stiggelbout AM, Van Hilten JJ. Mov Disord. 2004 Nov;19(11):1306-12.

 

Urinary Symptom Profile

Urinary Symptom Profile - the USP has been validated for use in neurological patients to capture lower urinary  symptoms

 

Short-form Qualiveen (sf-Qulaiveen)

Short-form Qualiveen (sf-Qulaiveen)- to capture bladder-realted quality of life impairment

 

ASEX- Arizona Sexual Experiences Scale

ASEX- Arizona Sexual Experiences Scale ­ this is simple to use and appropriate for a clinical setting

Scales

 

Manual Muscle Testing

Area covered: Motor Function

Symptoms addressed: Muscle strength, range of motion

Time to complete: 5 min

Number of items: 1

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication: Modified from 1993 Florence P. Kendall. Author grants permission to reproduce this chart

How to Accesshttps://www.niehs.nih.gov/research/resources/assets/docs/muscle_grading_and_testing_procedures_508.pdf (open access)

 

Timed Walk (6-min walk test)

Area covered: Global measures of functional impairment

Symptoms addressed: walking speed and distance

Time to complete: 10 min

Number of items: 1

Completed by: Healthprofessional and patien

Formal qualification necessary: no

Validation Publication: Butland R et al. Two-, six-, and 12-minute walking tests in respiratory disease. Br Med J (Clin Res Ed). 1982; 284(6329):1607-8.

How to Access: www.thoracic.org/statements/resources/pfet/sixminute.pdf (open access)

 

Appel ALS Scale

Area covered: Disease specific functional assessment

Symptoms addressed: Clinical status

Time to complete: 30 min

Number of items: 16

Completed by: Healthprofessional

Formal qualification necessary: yes

Validation Publication: Appel V et al. A rating scale for amyotrophic lateral sclerosis: description and preliminary experience. AnnNeurol. 1987; 22(3):328-33.

How to Access: https://www.ncbi.nlm.nih.gov/pubmed/3118763 (no open Access)

 

Norris ALS Scale

Area covered: Disease specific functional assessment

Symptoms addressed: Disease progression

Time to complete: 20 min

Number of items: 34

Completed by: Healthprofessional

Formal qualification necessary: yes

Validation Publication: Norris Jr FH et al. The administration of guanidine in amyotrophic lateral sclerosis. Neurology, 1974;24(8):721-8.

How to Access: https://books.google.ro/books?id=w1yPmehSZ2cC&pg=PA96&lpg=PA96&dq=norris+als+scale&source=bl&ots=VlCir2dL2v&sig=FlL79HFwX00L6c8crNEU9h8ivVo&hl=en&sa=X&ved=0ahUKEwiJlojAor3SAhUGWSwKHY3wAC4Q6AEISTAL#v=onepage&q=norris%20als%20scale&f=false (no open access)

 

Revised Neuropathy Disability Scale

Area covered: Disease specific functional assessment

Symptoms addressed: Functional scale

Time to complete: 5 min

Number of items: 5

Completed by: Healthprofessional and patient

Formal qualification necessary: no

Validation Publication: Hughes RA, Newsom-Davis JM, et al. Controlle trial prednisolone in acute polyneuropathy. Lancet, 1978;2(8093):750-3.

How to Access: http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD010974/full (open Access)

INCAT Disablility Scale

Area covered: Disease specific functional assessment

Symptoms addressed: functional evaluation

Time to complete: 10 min

Number of items: 5

Completed by: Healthprofessional

Formal qualification necessary: yes

Validation Publication: Hughes R et al. Randomized contolled trial of intravenous immunoglobulins vs.oral prednisolone in chronic inflammatory demyelinating polyneuropathy. Ann Neurol. 2001;50:195-201.

How to Access: www.neurology.org/content/suppl/2008/11/16/71.21.1742.DC1/E2.doc (open access)

 

Criteria for demyelination

Area covered: Positive identification of demylination

Symptoms addressed: Elctrophysiological evaluation

Time to complete: 30 min

Number of items: 7

Completed by: Healthprofessional

Formal qualification necessary: yes

Validation Publication: Van den Bergh et al. European Federation of Neurological Societies/Peripheral Nerve Society guideline on management of chronic inflammatory demyelinating polyradiculoneuropathy: report of a joint task force of the European Federation of Neurological Societies and the Peripheral
Nerve Society. Eur J Neurol 2010;17:356-363.
Van den Bergh et al. European Fed

How to Access: http://onlinelibrary.wiley.com.sire.ub.edu/doi/10.1111/j.1468-1331.2009.02930.x/epdf (no open access)

 

ALS Functional Rating Scale (ALSFRS-R)

Area covered: Disease specific functional assessment

Symptoms addressed: ADL

Time to complete: 20 min

Number of items: 13

Completed by: Healthprofessional

Formal qualification necessary: yes

Validation Publication: The ALS CNTF treatment study (ACTS) phase I-II Study Group. The amyotrophic lateral sclerosis functional rating scale. Assessment of activities of daily living in patients with ALS. Arch Neurol, 1996;53(2):141-7.

How to Access: https://www.outcomes-umassmed.org/ALS/alsscale.aspx (open Access)

 

Rankin Scale

Area covered: Global Measures of Functional Impairment

Symptoms addressed: Activities of daily living

Time to complete: 2 min

Number of items: 6

Completed by: Healthprofessional and patient

Formal qualification necessary: no

Validation Publication: Rankin J. Cerebral vascular accidents in patients over the age of 60. Scott Med J, 1957; 2:200-15.

How to Access: http://www.strokecenter.org/wp-content/uploads/2011/08/modified_rankin.pdf (open Access)

 

Scores

 

Barthel Index

Area covered: Global Measures of Functional Impairment

Symptoms addressed: Activities of daily living

Time to complete: 3 min

Number of items: 10

Completed by: Healthprofessional and patient

Formal qualification necessary: no

Validation Publication: Mahoney F, Barthel D. Functional evaluation: the Barthel index. Md State Md J, 1965; 14: 61-5.

How to Access: https://www.healthcare.uiowa.edu/igec/tools/function/barthelADLs.pdf (open access)

 

Myasthenia Gravis Composite Score

Area covered: Disease specific functional assessment

Symptoms addressed: Muscle activity

Time to complete: 20 min

Number of items: 10

Completed by: Healthprofessional

Formal qualification necessary: yes

Validation Publication: Burns T. History of outcome measures in myasthenia gravis. Muscle Nerve. 2010;42:5-13.

How to Access: doi:  10.1212/WNL.0b013e3181dc1b1e (no open access)

Scales

 

Coma/Near-Coma Scale (CNC)

Area covered: differentiation: coma/near coma, moderat, marked, extreme coma

Symptoms addressed: Visual, auditory, command following, threat response, olfactory, tactile, pain, vocalization

Time to complete: 10 min

Number of items: 8 (11)

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication: Rappaport M, Dougherty AM, Kelting DL. Evaluation of
coma and vegetative states. Arch Phys Med Rehabil 1992;73:
628-34.

How to Accesswww.archives-pmr.org/article/0003-9993(92)90127-I/pdf  (open access)

Recommended by: Aspen Work group
diagnosis categories are not consistent with Aspen workgroup criteria

 

Coma Recovery Sacle-Revised (CRS-R)

Area covered: differentiation: coma/UWS/MCS/

Symptoms addressed: Auditory, visual, motor, oral, communication, arousal

Time to complete: 25 min

Number of items: 6(23)

Completed by: Healthprofessional

Formal qualification necessary: yes

Validation Publication: Giacino JT, Kalmar K, Whyte J, The JFK Coma Recovery Scale-Revised: measurement characteristics and diagnostic utility.JArch Phys Med Rehabil. 2004 Dec;85(12):2020-9.

How to Access: www.archives-pmr.org/article/S0003-9993(04)00477-0/fulltext (open access)

 

Comprehensive Levels of Consciousness Scale (CLOCS)

Area covered: DOC - motor behiour scale

Symptoms addressed: Eye responses, motor, posture, communication, general responsiveness

Time to complete: 5 min

Number of items: 7(7)

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication: Stanczak DE, White JG 3rd, Gouview WD, et al. Assessment of
level of consciousness following severe neurological insult: a comparison of the psychometric qualities of the Glasgow Coma Scale and the Comprehensive Level of Consciousness Scale. J Neurosurg 1984;60:955-60.

How to Access: thejns.org/view/journals/j-neurosurg/60/5/article-p955.xml (no open access)

not recommended  for seral bedside behavioural assessment of DOC by ACRM, 2010

 

Disorders of Consciousness Scale (DOCS)

Area covered: DOC -assessement

Symptoms addressed: Auditory, visual, tactile, sensory, swallowing, olfactory

Time to complete: 45 min

Number of items: 1(23)

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication: Pape TL, Senno RG, Guernon A, Kelly JP. A measure of neurobehavioral
functioning after coma. Part II: clinical and scientific implementation. J Rehabil Res Dev 2005;42:19-27.

How to Access: https://pdfs.semanticscholar.org/b905/3bbbd5efd409608aaec8b3c38c32f401028f.pdf (no open access)

Recommended by: ACRM, 2010:may be used to assess DOC with moderate reservations.

ACRM, 2010:may
be used to assess DOC with moderate reservations.
ACRM, 2010:may
be used to assess DOC with moderate reservations.

 

Full Outline of UnResponsivesess Score (FOUR)

Area covered: coma evaluation

Symptoms addressed: Eye response, motor response, respiration, brainstem reflexes

Time to complete: 10 min

Number of items: 4(4)

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication: Wijdicks EF. Clinical scales for comatose patients: the Glasgow
Coma Scale in historical context and the new FOUR score. Rev Neurol Dis 2006;3:109-17.

How to Access: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4071859/ (open access)

Recommended by: ACRM:not recommended for serial bedside behavioral assessment of DOC

good reliability rating and rapid application in intensive care for intubated patients

 

Glasgow Coma Scale (GLS)

Area covered: coma evaluation

Symptoms addressed: Eye, verbal, motor, brainstem reflexes

Time to complete: 5 min

Number of items:4(4)

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication: Born JD, Hans P, Albert A, Bonnal J. Interobserver agreement in
assessment of motor response and brain stem reflexes. Neurosurgery
1987;20:513-7.

How to Access: https://academic.oup.com/neurosurgery/article-abstract/20/4/513/2745600 (open access)

Recommended by: ACRM:not recommended for serial bedside behavioral assessment of DOC

quick application in intensive care for coma evaluation, does not intergrate the fact of intubation

 

Innsbruck Coma Scale (INNS)

Area covered: behaviour scale

Symptoms addressed: Eye responses, auditory, pain posture, oral

Time to complete: 10 min

Number of items: 1(8)

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication: Benzer A, Mitterschiffthaler G, Marosi M, et al. Prediction of
non-survival after trauma: Innsbruck Coma Scale. Lancet 1991; 338:977-8.

How to Access: https://www.sciencedirect.com/science/article/pii/014067369191840Q (no open access)

 

Loewenstein Communicaton Scale (LOEW)

Area covered: evaluation of communication

Symptoms addressed: Mobility, respiration, visual, auditory, communication

Time to complete: 25 min

Number of items: 5(25)

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication: Borer-Alafi N, Gil M, Sazbon L, Korn C. Loewenstein communication
scale for the minimally responsive patient. Brain Inj 2002;16:593-609.

How to Access: https://www.tandfonline.com/doi/abs/10.1080/02699050110119484 (open Access)

not recommended ACRM:at this time for serial bedside behavioral assessment of DOC.

 

Swedish Reaction Level Scale-1985 (RLS85)

Area covered: evaluation of levls of reaction

Symptoms addressed: Responsiveness

Time to complete: 15 min

Number of items: 1(1)

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication: Stålhammar D, Starmark JE, Holmgren E, et al. Assessment of
responsiveness in acute cerebral disorders: a multicentre study on
the reaction level scale (RLS 85). Acta Neurochir 1988;90:73-80.

How to Access: https://link.springer.com/article/10.1007/BF01560558 (open Access)

Recommended by: ACMR: not recommended at this time for serial bedside behavioral assessment of DOC.

 

Sensory Modality Assessment Technique (SMART)

Area covered: differentiation of coma/UWS/MCS

Symptoms addressed: Auditory, vision, tactile, olfactory, gustatory, wakefulness, motor, communication

Time to complete: 60+ min

Number of items: 8(8)

Completed by: Healthprofessional

Formal qualification necessary: yes

Validation Publication: Gill-Thwaites H. The Sensory Modality Assessment Rehabilitation
Technique—a tool for assessment and treatment of patients
with severe brain injury in a vegetative state. Brain Inj 1997;11:
723-34.

How to Access: https://pdfs.semanticscholar.org/dbb5/6c20c0161224212fd1c81ac244bba7f3d2e4.pdf (open access)

Recommended by: ACMR: may be used to assess DOC with moderate reservations.

 

Sensory Stimulation Assessment Mesures (SSAM)

Area covered: neurosensorial evaluation

Symptoms addressed: Auditory, vision, tactile, olfactory, eye opening, motor, vocalization

Time to complete: 30 min

Number of items: 5(15)

Completed by: Healthprofessional

Validation Publication: Rader MA, Ellis DW. The Sensory Stimulation Assessment
Measure (SSAM): a tool for early evaluation of severely braininjured
patients. Brain Inj 1994;8:309-21.

How to Access: https://www.tandfonline.com/doi/abs/10.3109/02699059409150982 (open access)

Recommended by: ACMR:may be used to assess DOC with moderate reservations. 

 

Wessex Head Injury Matrix (WHIM)

Area covered: behaviour assessment of DOC patients

Symptoms addressed: Basic behaviors, social/communication, attention/cognitive, orientation/memory

Time to complete: 30-120 min

Number of items: 4(58)

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication: Shiel A, Horn SA, Wilson BA, Watson MJ, Campbell MJ, McLellan
DL. The Wessex Head Injury Matrix (WHIM) main scale: a preliminary report on a scale to assess and monitor patient recovery after severe head injury. Clin Rehabil 2000;14:408-16.

How to Access: https://journals.sagepub.com/doi/abs/10.1191/0269215500cr326oa (open access)

Recommended by: idem

very centered on evaluation of cognitive funciton of DOC patients, complementary but no possibiliy ot differentiate DOC phases

 

Western Neuro Sensory Stimulation Profile (WNSSP)

Area covered: behaviour assessment of DOC patients

Symptoms addressed: Visual, tactile, olfactory, arousal/attention, auditory, expressive communication

Time to complete: 45 min

Number of items: 5(32)

Completed by: Healthprofessional

Formal qualification necessary: ?

Validation Publication: Ansell BJ. Slow-to-recover patients: improvement to rehabilitation
readiness. J Head Trauma Rehabil 1993;8:88-98.

How to Access: https://journals.lww.com/headtraumarehab/Abstract/1993/09000/Slow_to_recover_patients__Improvement_to.11.aspx (open access)

Recommended by: idem

 

Scores

 

Reuth DOC Response Assessment (RDOC-RA)

Area covered: motor behaviour observation assessement of DOC

Symptoms addressed: complementary to CRS-R Auditory, visual, motor, oral, communication, arousal

Completed by: Healthprofessional

Validation Publication: Gilutz Y, Lazary A, Karpin H, Vatine JJ, Misha T, Fortinsky H, Sharon H. Detailed behvioural assessement promotes accurate diagnosis in patientes with disorders of sconsciousness

How to Access: https://core.ac.uk/download/pdf/82884712.pdf (open access)

 

Motor Behaviour tool (MBT tool)

Area covered: motor behaviour observation assessement of DOC

Symptoms addressed: CRS-R modulation by assessement of motor behaviour

Time to complete: 25 min

Number of items: as CRS plus 10 item

Validation Publication:
Pignat JM, Mauron E, Jöhr J, Gilart de Keranflec'h C, Van De Ville D, Preti MG, Meskaldji DE, Hömberg V, Laureys S, Draganski B, Frackowiak R, Diserens K.
Outcome Prediction of Consciousness Disorders in the Acute Stage Based on a Complementary Motor Behavioural Tool. PLoS One. 2016 Jun 30;11(6).
P
 

How to Access: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0156882 (no open access)

Scales

 

Mini Mental State Examination

Symptoms addressed: Global cognitive assessment

Time to complete:  10 min

Number of items:  11

Completed by: Health professional/patient

Validation Publication: Folstein, M.F., Mini-Mental State, Journal of Psychiatry, volume 12, issue 3, pp 189-198

How to Access: http://turkpsikiyatri.org/arsiv/mmse_folstein_mchugh.pdf (open Access)

 

Katz Index

Symptoms addressed: Independence in Activities of Daily Living 

Time to complete: 5 min

Number of items: 6

Completed by: Healthprofessional

Validation Publication: Katz S., et al. Studies of illness in the aged. The Index of ADL: a standardized measure of biological and psychosocial function. JAMA. 1963;185(12):914-919.

How to Accesshttps://www.alz.org/careplanning/downloads/katz-adl.pdf (open access)

 

Instrumental Activities of Daily Living

Symptoms addressed: Independence in Instrumental Activities of Daily Living 

Time to complete: 5 min

Number of items: 8

Completed by: Healthprofessional

Validation Publication: Lawton M.P. e Brody E.M., Gerontologist, 9:179-186, 1969)

How to Accesshttp://www.eurohex.eu/bibliography/pdf/Lawton_Gerontol_1969-1502121986/Lawton_Gerontol_1969.pdf (open access)

 

Clinical Dementia Rating (CDR) Scale

Symptoms addressed: Evaluation of staging severity of dementia

Time to complete: 15 min

Number of items: 6

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication: Morris JC, The Clinical Dementia Rating (CDR) Current version and scoring rules. Neurology. 1993; vol 43(11), pp 2412-2414.

How to Accessn.neurology.org/content/43/11/2412.2 (open access)

 

Expanded Disability Status Scale (EDSS)

Symptoms addressed: Disease progression in SM patients

Time to complete: 10 min

Number of items: 7

Completed by: Healthprofessional

Validation Publication: Kurtzke JF,. Rating neurologic impairment in multiple sclerosis: an expanded disability status scale (EDSS). Neurology 1983; vol 33, pp 1444–1452. 

How to Accesshttps://www.nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Brochures/10-2-3-29-EDSS_Form.pdf (open access)

 

Geriatric Depression Scale (GDS)

Symptoms addressed: Depression

Time to complete: 10 min

Number of items: 30

Completed by: Patient

Validation Publication: Yesavage JA, et al. Development and validation of geriatric depression screening: a preliminary report. J Psychiatr Res 1983; vol.17 pp :37-49

How to Accesshttps://pdfs.semanticscholar.org/5ab1/91352d3f0b530936ca9acae91245896c8cef.pdf (open access)

 

Scores

 

SF-36

Symptoms addressed: Perceived health status

Time to complete: 15 min

Number of items: 36

Completed by: Patient

Validation Publication: Ware and Sherbourne, Medical Care, 1992 Jun; vol. 30(6), pp:473-83

How to Accesshttps://pdfs.semanticscholar.org/06cb/0076e310136d0ca8b56cc8585ec2bf43e029.pdf (open access)

 

Hachinski ischemic score (HIS)

Symptoms addressed: differential diagnosis of dementia (primary degenerative, vascular or multi-infarct, mixed type)

Time to complete: 5 min

Number of items: 13

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication: Hachinski VC, et al., “Cerebral blood flow in dementia.” Archives of Neurology, 1975; vol. 32 pp:632-637

 

Neuropsychiatric Inventory (NPI)

Symptoms addressed: Behavioural and Psychological Symptoms of Dementia

Time to complete: 15 min

Number of items: 12

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication: Cummings JL, et al.  Neurology 1994; vol. 44, pp:2308-2314

How to Accesshttps://pdfs.semanticscholar.org/23cb/103e7a4566ec4694761e278199a7a4f290a1.pdf (open access)

 

State – Trait Anxiety Inventory (S.T.A.I. Y-1)

Symptoms addressed: State Anxiety

Time to complete: 10 min

Number of items: 20

Validation Publication: Spielberger, Gorsuch & Lushene, 1970

How to Accesshttps://onlinelibrary.wiley.com/doi/pdf/10.1002/9780470479216.corpsy0943 (open access)

Scales

 

Engel Epilepsy Surgery Outcome Scale

Symptoms addressed: Outcome

Time to complete: 15 min

Number of items: 4

Completed by: Healthprofessional

Validation Publication: Engel, Jerome (1993). Surgical Treatment of the Epilepsies. Lippincott Williams & Wilkins. ISBN 0-88167-988-7.

Open access

Recommended by: ILAE/EAN

 

Standardized battery for testing patients during and after seizures in EMUs

Symptoms addressed: Seizure

Time to complete: 30 min

Completed by: Healthprofessional

Validation Publication: Beniczky. Testing patients during seizures: A European consensus procedure developed by a joint taskforce of the ILAE - Commission on European Affairs and the European Epilepsy Monitoring Unit Association.Epilepsia. 2016 Sep;57(9):1363-8

Open access

Recommended by: ILAE/EAN

 

ILAE classifications of postoperative seizure outcome

Symptoms addressed: Outcome

Time to complete: 10 min

Number of items: 7

Completed by: Healthprofessional

Validation Publication: Wieser, W.T. ILAE Commission Report. Proposal for a new classification of outcome with respect to epileptic seizures following epilepsy surgery. Epilepsia, 42 (2001), pp. 282-286

Open access

Recommended by: ILAE/ EAN

 

Status Epilepticus Severity Score (STESS)

Symptoms addressed: Outcome

Time to complete: 5 min

Number of items: 9

Completed by: Healthprofessional

Formal qualification necessary: yes

Validation Publication: Rossetti AO. EB. Status Epilepticus Severity Score (STESS): a tool to orient early treatment EB. Status Epilepticus Severity Score (STESS): a tool to orient early treatment strategy. J Neurol. 2008 Oct;255(10):1561-6.

Open access

Recommended by: ILAE/ EAN

 

Epidemiology-based mortality score in status epilepticus (EMSE)

Symptoms addressed: Outcome

Time to complete: 10 min

Completed by: Healthprofessional

Validation Publication: Leitinger M. Epidemiology-based mortality score in status epilepticus (EMSE). Neurocrit Care. 2015 Apr;22(2):273-82.

Open Access

Recommended by: ILAE/ EAN

 

Encephalitis Nonconvulsive Status Epilepticus Diazepam Resistence Imaging Tracheal Intubation (END-IT) score

Symptoms addressed: Outcome

Time to complete: 10 min

Number of items: 5

Completed by: Healthprofessional

Validation Publication: Gao Q. Prediction of functional outcome in patients with convulsive status epilepticus: the END‐IT score. Crit Care. 2016;20:46.

Open access

Recommended by: ILAE/ EAN

 

Scores

 

Seizure Severity Questionaire

Symptoms addressed: Seizure

Time to complete: 10-15 min

Number of items: 22

Completed by: Healthprofessional and patient

Validation Publication: Cramer JA. Development of a new seizure severity questionnaire: initial reliability and validity testing. Epilepsy Res. 2002 Feb;48(3):187-97.

No open access

Recommended by: ILAE/ EAN

 

QUALITY OF LIFE IN EPILEPSY - QOLIE-31P

Symptoms addressed: QoL

Time to complete: 15-30 min

Number of items: 40

Completed by: patient

Validation Publication: Cramer JA, Van Hammée G; N132 Study Group. Maintenance of improvement in health-related quality of life during long-term treatment with levetiracetam. Epilepsy Behav. 2003 Apr;4(2):118-23.

No open access

Recommended by: ILAE/ EAN

 

The Personal Impact of Epilepsy Scale (PIES).

Symptoms addressed: Impact of disase

Time to complete: 15-30 min

Number of items: 25

Completed by: Patient

Validation Publication: Fisher RS. The Personal Impact of Epilepsy Scale (PIES). Epilepsy Behav. 2015 Jan;42:140-6.

No open access

Recommended by: ILAE/ EAN

 

The Neurological Disorders Depression Inventory for Epilepsy (NDDI-E)

Symptoms addressed: Depression

Time to complete: 5 min

Number of items: 6

Completed by: Patient

Validation Publication: Gilliam FG, Rapid detection of major depression in epilepsy: a multicentre study. Lancet Neurol. 2006 May;5(5):399-405.

No open access

Recommended by: ILAE/ EAN

 

Liverpool adverse event profile

Symptoms addressed: Adverse effects

Time to complete: 15 min

Number of items: 19

Completed by: Healthprofessional and patient

Validation Publication: Baker GA. Initial development, reliability, and validityof a patient-based adverse events scale. Epilepsia 1994;35:80

Open access

Recommended by: ILAE/ EAN

Scores

 

MIDAS

Symptoms addressed: Disability in migraine

Time to complete: 3 min

Number of items: 5

Completed by: patient

Validation Publication: Stewart WF et al. Reliability of the migraine disability assessment score in a population-based sample of headache sufferers. Cephalalgia 1999; 19: 107-14

How to Access: https://onlinelibrary.wiley.com/doi/abs/10.1046/j.1468-2982.1999.019002107.x (open access)

 

HIT-6

Symptoms addressed: Headache impact

Time to complete: 4 min

Number of items: 6

Completed by: patient

Validation Publication: Kosinski M et al. A six-item short-form survey for measuring headache impact: the HIT-6. Qual Life Res 2003; 12: 963-74.

How to Access: https://www.researchgate.net/publication/8980747_A_six-item_short-form_survey_for_measuring_headache_impact_The_HIT-6 (open access)

 

Cluster Headache Quality of life scale

Symptoms addressed: QoL specific for cluster headache

Time to complete: 10 min

Number of items: 28

Completed by: patient

Validation Publication: Abu Bakar N et al. The development and validation of the Cluster Headache Quality of life scale (CHQ). J Headache Pain 2016; 17: 79.

How to Access: https://pdfs.semanticscholar.org/b486/a29d0dd05dea3844c5448270822e753e606c.pdf 

 

HeadApp

Symptoms addressed: Headache impact

Completed by: patient

How to Access: https://www.headapp.com/en/computer-based-cognitive-rehabilitation-therapy/ (open access)

 

Migraine Buddy

Symptoms addressed: Migraine

Completed by: patient

How to Access: https://migrainebuddy.com/ (open access)

 

HURT

Symptoms addressed: Headache treatment

Time to complete: 5 min

Completed by: patient

Validation Publication: Westergaard ML et al. The Headache Under-Response to Treatment (HURT) Questionnaire: assessment of utility in headache specialist care. Cephalalgia 2013; 33: 245-255

How to Access: https://www.l-t-b.org/assets/43/4C3FEA0E-A757-4D10-977FFBA6E5AE721D_document/HURT_utility.pdf (open access)

Scores

 

Addenbrooke's Cognitive Examination - III

Area Covered: Cognitive assessment

Symptoms addressed: cognitive

Time to complete:15-20 minutes

Number of items: 100

Completed by: patient

Formal qualification necessary? No

Link to training resource: https://sydney.edu.au/brain-mind/resources-for-clinicians/dementia-test.html

Open access: yes

Validation publication: https://www.ncbi.nlm.nih.gov/pubme/?term=Validation+of+the+Addenbrooke%27s+Cognitive+Examination+III+i

Languages: English, Arabic, Chinese, Estonian, German, Greek, Gujarati, Hebrew, Hindi,Hungaria, Italian, Japanese, Polish, Spanish, Tamil, Ukranian, Urdu

Recommended by: Alzheimer's Society, NICE

 

Behavioural Inattention Test

Area Covered: Neglect symptom diagnosis and severity

Symptoms addressed: neglect

Time to complete: 40 minutes

Number of items: 15

Completed by: patient

Formal qualification necessary? No

Link to training resource: https://www.pearsonclinical.co.uk/Psychology/AdultCognitionNeuropsychologyandLanguage/AdultAttentionExecutiveFunction/BehaviouralInattentionTest https://www.pearsonclinical.co.uk/Psychology/AdultCognitionNeuropsychologyandLanguage/AdultAttentionExecutiveFunction/BehaviouralInattentionTest(BIT)/BehaviouralInattentionTest(BIT).aspx

Open access: yes

Validation publication: https://www.ncbi.nlm.nih.gov/pubmed/2056321

Languages: This is a suite of visuospatial tasks which does not rely on translation to different languages

 

Visual Object and Space Perception Battery (VOSP)

Area Covered: Visual object and spatial deficits diagnosis

Symptoms addressed: Visual agnosia and visuospatial deficits

Time to complete: 30 minutes

Number of items: 8

Completed by: patient

Formal qualification necessary? No

Link to training resource: https://www.pearsonclinical.co.uk/Psychology/AdultCognitionNeuropsychologyandLanguage/AdultPerceptionandVisuomotorAbilities/VisualObjectandSpacePerceptionBattery(VOSP)/VisualObjectandSpacePerceptionBattery(VOSP).aspx

Open access: yes

Validation publication: https://www.ncbi.nlm.nih.gov/pubmed/23874610

Languages: This is a suite of visual tasks which does not rely on translation to different languages

 

Goldenberg imitation tests

Area Covered: Limb apraxia severity

Symptoms addressed: Limb apraxia

Time to complete: 5 minutes

Number of items: 20

Completed by: patient

Formal qualification necessary? No

Link to training resource: https://www.ncbi.nlm.nih.gov/pubmed/8708686

Open access: no

Validation publication: https://www.ncbi.nlm.nih.gov/pubmed/8708686

Language: This is a test of gesture imitation and does not rely on translation to different languages

 

Multilingual Aphasia Examination

Area Covered: Language

Symptoms addressed: Aphasia

Time to complete: 30 minutes

Number of items: 11 subtests

Completed by: patient

Formal qualification necessary? yes

Link to training resource: https://www.parinc.com/Products/Pkey/222

Open access: no

 

Screening for Aphasia in Neurodegeneration (SAND)

Area Covered: Language

Symptoms addressed: Primary Progressive Aphasia

Time to complete: 20 minutes

Number of items: 9 subtests

Completed by: patient

Formal qualification necessary? no

Link to training resource: https://link.springer.com/article/10.1007/s10072-017-3001-y

Open access: no

 

Cambridge Semantic Memory Test

Area Covered: Semantic memory

Symptoms addressed: Semantic amnesia

Time to complete: 30 minutes

Number of items: 7 subtests

Completed by: patient

Formal qualification necessary? no

Link to training resource: https://www.tandfonline.com/doi/full/10.1080/13554790903405693

Open access: no

 

Boston Naming Test

Area Covered: Language

Symptoms addressed: Anomia, paraphasia

Time to complete: 10 minutes

Number of items: 60

Completed by: patient

Formal qualification necessary? no

Link to training resource: http://aphasiology.pitt.edu/69/

Open access: no

 

Wisconsin Card Sorting Test

Area Covered: Executive function

Symptoms addressed: Abstract thinking, reasoning flexibility

Time to complete: 30 minutes

Number of items: 64

Completed by: patient

Formal qualification necessary? no

Link to training resource: https://www.parinc.com/products/pkey/479

Open access: no

Clock-drawing test

Area Covered: Visuoconstructive

Symptoms addressed: Visuo-construcitve and executive functions

Time to complete: 5 minutes

Number of items: 1

Completed by: patient

Formal qualification necessary? no

Open access: no

 

Reading the Mind in the Eyes Test

Area Covered: Theory of Mind

Symptoms addressed: Emotions perception

Time to complete: 20 minutes

Number of items: 36

Completed by: patient

Formal qualification necessary? no

Link to training resource: https://www.autismresearchcentre.com/arc_tests/

Open access: no

 

Montreal Cognitive Assessment (MoCA)

Area Covered: Cognitive assessment

Symptoms addressed: Cognitive

Time to complete: 10 minutes

Number of items: 30

Completed by: patient

Formal qualification necessary? no

Link to training resource: https://www.mocatest.org/

Open access: yes

Validation publication: https://www.ncbi.nlm.nih.gov/pubmed/15817019

Languages: available in nearly 100 languages

Recommended by: NIH, CSC

Scales

 

Non-Motor Symptoms Scale (NMSS) 

Symptoms addressed: Non-motor symptoms of PD

Time to complete: 15 min

Number of items: 30

Completed by: Healthprofessional

Validation Publication: Chaudhuri KR et al. The metric properties of a novel non-motor symptoms scale for Parkinson's disease:Results from an international pilot study. Mov Disord. 2007;22(13):1901-11.

How to Accesshttp://www.movementdisorders.org/MDS-Files1/PDFs/Rating-Scales/NMSS30itemsrevised.pdf (open access)

Recommended by: MDS

 

Unified Dystonia Rating Scale (UDRS) 

Symptoms addressed: Dystonia

Time to complete: 10 min

Number of items: 10

Completed by: Healthprofessional

Validation Publication: Comella CL, et al. Rating scales for dystonia: a multicenter assessment. Mov Disord. 2003;18(3):303-12.

How to Access: http://www.movementdisorders.org/MDS-Files1/PDFs/Rating-Scales/scale_UDRS.pdf (open access)

Recommended by: MDS

 

Fahn-Tolosa-Marin Tremor Rating scale

Symptoms addressed: Tremor, functional dysability

Time to complete: 10 min

Number of items: 21

Completed by: Healthprofessional

Validation Publication: This scale was pubished in the book "Jankovic J, Tolosa E, editors. Parkinson’s Disease and Movement Disorders. 2nd ed. Baltimore: Williams & Wilkins; 1993. p. 225-34".

How to Access: https://www.researchgate.net/profile/Eduard_Tolosa/publication/307538277_Clinical_Rating_Scale_for_Tremor/links/5832e79508ae004f74c57ae1/Clinical-Rating-Scale-for-Tremor.pdf (open access)

Recommended by: MDS

 

Unified Multiple System Atrophy Rating Scale (UMSARS) 

Symptoms addressed: Historical review, motor symptoms, autonomic symptoms, dysability

Time to complete: 20 min

Number of items: 35

Completed by: Healthprofessional

Validation Publication: Wenning GK, et al. Development and validation of the Unified Multiple System Atrophy Rating Scale (UMSARS). Mov Disord. 2004 Dec;19(12):1391-402. 

How to Access: http://www.movementdisorders.org/MDS-Files1/PDFs/MDS-UPDRS-Rating-Scales/scale_UMSARS.pdf (open access)

Recommended by: MDS

 

Unified Parkinson's Disease Rating Scale (MDS-UPDRS) 

Symptoms addressed: Non-motor symptoms, motor symptoms, motor complications in PD

Time to complete: 55 min

Number of items: 72

Completed by: Healthprofessional and patient

Validation Publication: Goetz CG et al. Movement Disorder Society-sponsored revision of the Unified Parkinson's Disease Rating Scale (MDS-UPDRS): scale presentation and clinimetric testing results. Mov Disord. 2008;23(15):2129-70.

How to Access: http://www.movementdisorders.org/MDS-Files1/PDFs/Rating-Scales/MDS-UPDRS_English_FINAL.pdf  (open access)

Recommended by: MDS

 

Fahn-Marsden dystonia rating scale

Symptoms addressed: Dystonia

Time to complete: 15 min

Number of items: 10

Completed by: Healthprofessional

Formal qualification necessary: yes

Validation Publication: Burke RE et al. Validity and reliability of a rating scale for the primary torsion dystonias. Neurology. 1985;35(1):73-7.

How to Access: http://www.movementdisorders.org/MDS-Files1/PDFs/Rating-Scales/dystonia.pdf (open access)

 

Rating Scale for Psychogenic Movement Disorders

Symptoms addressed: Phenomena, functions in psychogenic movement disorders

Time to complete: 15 min

Number of items: 26

Completed by: Healthprofessional

Validation Publication: Hinson VK, et al.  Rating scale for psychogenic movement disorders: scale development and clinimetric testing. Mov Disord. 2005;20(12):1592-7.

How to Access: http://www.movementdisorders.org/MDS-Files1/PDFs/MDS-UPDRS-Rating-Scales/scale_PMD.pdf (open access)

Recommended by: MDS

 

Unified Huntington's Disease Rating Scale (UHDRS)

Symptoms addressed: Huntington's disease

Time to complete: 30 min

Number of items: 59

Completed by: Healthprofessional

Validation Publication: Huntington Study Group. Unified Huntington's Disease Rating Scale: reliability and consistency.  Mov Disord. 1996 Mar;11(2):136-42

How to Access: http://www.movementdisorders.org/MDS-Files1/PDFs/Rating-Scales/uhdrs.pdf (open access)

Recommended by: MDS

 

Scores

 

Quality of Life Essential Tremor Questionnaire 

Symptoms addressed: Quality of life in essential tremor

Time to complete: NA

Number of items: 13+30

Completed by: Patient

Validation Publication: Tröster AI, et al. Quality of life in Essential Tremor Questionnaire (QUEST): development and initial validation. Parkinsonism Relat Disord. 2005;11(6):367-73.

How to Access: http://www.movementdisorders.org/MDS-Files1/PDFs/MDS-UPDRS-Rating-Scales/QUEST.pdf (open access)

Recommended by: MDS

 

PDQ-39

Symptoms addressed: Quality of life in PD

Time to complete: NA

Number of items: 39

Completed by: Patient

Validation Publication: Jenkinson C, et al. The Parkinson's Disease Questionnaire (PDQ-39): development and validation of a Parkinson's disease summary index score. Age Ageing. 1997 Sep;26(5):353-7.

How to Access: https://process.innovation.ox.ac.uk/p/pdq-39/stage/1/the-parkinsons-disease-questionnaire-the-39-item-version.aspx  (no open access)

Recommended by: University of Oxford

 

Unified Dyskinesia Rating Scale (UDysRS) 

Symptoms addressed: Dyskinesia in PD

Time to complete: 15 min

Number of items: 26

Completed by: Healthprofessional and patient

Validation Publication: Goetz CG, et al. Which dyskinesia scale best detects treatment response? Mov Disord. 2013;28(3):341-6.

How to Access: http://www.movementdisorders.org/MDS-Files1/PDFs/UDysRS_English_FINAL.pdf (open access)

Recommended by: MDS

Scales

 

ICARS (International Cooperative Ataxia Rating Scale)

Area covered: cerebellar ataxia

Symptoms addressed: postural, gait, limb ataxia, dysarthria, oculomotor disturbances

Time to complete: 20-30 minutes

Number of items: 19 (4 subscales, max score 100)

Completed by:  physician

Formal qualification necessary: no

Validation Publications:

1: Schmitz-Hübsch T, et al. Reliability and validity of the International Cooperative Ataxia

Rating Scale: a study in 156 spinocerebellar ataxia patients. Mov Disord. 2006;21:699-704

2. Storey E, et al. Inter-rater reliability of the International Cooperative Ataxia Rating Scale (ICARS). Mov Disord. 2004;19:190-2 (For Friedreich ataxia)

How to access: https://www.augusta.edu/alliedhealth/pt/documents/icarsform.pdf

 

SARA (Scale for the assessment and rating for ataxia)

Area covered: cerebellar ataxia

Symptoms addressed: gait, stance, sitting, speech, finger-chase test, nose-finger test, fast alternating movements, heel-to-shin test 

Time to complete: 10 minutes

Number of items: 8 (max score 40)

Completed by:  physician

Formal qualification necessary: no

Validation Publications:

1: Schmitz-Hübsch T, et al. Scale for the assessment and rating of ataxia: development of a new clinical scale. Neurology. 2006;13;66:1717-20 (For Spinocerebellar ataxias)

2. Bürk K, et al. Comparison of three clinical rating scales in Friedreich ataxia (FRDA). Mov Disord. 2009;15;24:1779-84 (For Friedreich ataxia)

How to access: http://www.ataxia-study-group.net/html/about/ataxiascales/sara/SARA.pdf

Scores

 

STROBE (cohort studies)

Area covered: Methodological quality of study designs

Symptoms addressed: Items to included in cohort studies

Time to complete: 30min

Number of items: 22

Completed by: Healthprofessional

Formal qualification necessary: no

How to Accesshttp://www.strobe-statement.org/index.php?id=available-checklists (open access)

 

STROBE (case-control studies)

Area covered: Methodological quality of study designs

Symptoms addressed: Items to include in case-control studies

Time to complete: 30 min

Number of items: 22

Completed by: Healthprofessional

Formal qualification necessary: no

How to Access: http://www.strobe-statement.org/index.php?id=available-checklists (open Access)

 

STROBE (cross-sectional studies)

Area covered: Methodological quality of study designs

Symptoms addressed: Items to included in cross-sectional studies

Time to complete: 30 min

Number of items: 22

Completed by: Healthprofessional

Formal qualification necessary: yno

How to Access: http://www.strobe-statement.org/index.php?id=available-checklists (open access)

 

AGREE

Area covered: Methodological quality of guidelines

Symptoms addressed: Objectives, development & applicability

Time to complete: 60 min

Number of items: 23

Completed by: Healthprofessional

Formal qualification necessary: yes

How to Access: http://www.agreetrust.org/wp-content/uploads/2013/10/AGREE-II-Users-Manual-and-23-item-Instrument_2009_UPDATE_2013.pdf (open access)

 

CONSORT

Area covered: Methodological quality of clinical trials

Symptoms addressed: Items to included in randomized clinical trials

Time to complete: 30 min

Number of items: 25

Completed by: Healthprofessional

Formal qualification necessary: no

How to Access: www.consort-statement.org/Media/Default/Downloads/CONSORT%202010%20Checklist.doc (open access)

 

STROND

Area covered: Methodological quality of incidence & prevalence studies

Symptoms addressed: Items to include in incidence & prevalence studies

Time to complete: 30 min

Number of items: 15

Completed by: Healthprofessional

Formal qualification necessary: yes

How to Access: http://www.neurology.org/site/misc/strondchecklist.pdf (open access)

 

SF-36

Area covered: Quality of life

Symptoms addressed: Quality of life (generic)

Time to complete: 30 min

Number of items: 36

Completed by: Healthprofessional

Formal qualification necessary: no

How to Access: http://www.rand.org/health/surveys_tools/mos/36-item-short-form/survey-instrument.html (open access)

Recommended by: EAN

 

EQ-5D-3L

Area covered: Quality of life

Symptoms addressed: Quality of life (generic)

Time to complete: 5 min

Number of items: 5

Completed by: Patient

Formal qualification necessary: no

How to Access: http://www.euroqol.org/eq-5d-products/eq-5d-3l/self-complete-version-on-laptopdesktop-computers.html (open access)

Recommended by: EAN

 

Critical Reading of Scientific Literature Observational Studies

Area covered: Methodological quality of study designs

Symptoms addressed: Items to evaluate in Observational Studies

Time to complete: 30 min

Number of items: 17

Completed by: Healthprofessional

Formal qualification necessary: no

 

The COSMIN checklist

Area covered: Methodological quality of study designs

Symptoms addressed: Quality of studies

Time to complete: NA

Number of items: 4 steps

Completed by: Healthprofessional

Formal qualification necessary: yes

How to Access: www.cosmin.nlwww.emgo.nl

Scales

 

Action Research Reaction Test (ARAT)

Area covered: Symptom severity

Symptoms addressed: Activities of Daily Living, coordination, dexterity, upper limb function

Time to complete: 6-30 min

Number of items: 19

Completed by: Healthprofessional

Validation Publication: https://www.ncbi.nlm.nih.gov/pubmed/7333761

How to Accesshttp://www.strokecenter.org/wp-content/uploads/2011/08/action_research_arm_test.pdf (open access)

 

Revised-Amyotrophic Lateral Sclerosis Functional Rating Scale (R-ALFRS)

Area covered: Symptom severity

Symptoms addressed: Functional impairement

Time to complete: 6-30 min

Number of items: 12

Completed by: Healthprofessional

Validation publication: https://www.ncbi.nlm.nih.gov/pubmed/8639063

How to Access: https://www.outcomes-umassmed.org/als/alsscale.aspx (open access)

 

National Institutes of Health Stroke Scale (NIHSS)

Area covered: Symptom severity

Symptoms addressed: Aphasia, motor deficit, vision, perception, dysarthria, cerebellar function, cognition

Time to complete: 5 min

Number of items: 15

Completed by: Healthprofessional

Formal qualification necessary: yes

Validation Publication: https://www.ncbi.nlm.nih.gov/pubmed/2749846

How to Access: https://www.ncbi.nlm.nih.gov/pubmed/3118763 (no open Access)

 

Barthel index (BI)

Area covered: Impression of the disease

Symptoms addressed: Activities of daily living, gait, functional mobility

Time to complete: 5 min

Number of items: 10

Completed by: Healthprofessional

Validation Publication: https://www.ncbi.nlm.nih.gov/pubmed/3403500

How to Access: Available at the Internet Stroke Center (open access)

 

Berg Balance Scale(BBS)

Area covered: Symptom severity

Symptoms addressed: Balace, functional mobility

Time to complete: 15-20 min

Number of items: 14

Completed by: Healthprofessional

Validation Publication: https://www.ncbi.nlm.nih.gov/pubmed/1468055

How to Access: http://www.strokecenter.org/wp-content/uploads/2011/08/berg.pdf (open access)

 

Fugl-Meyer Assessment of Motor Recovery(FMA)

Area covered: Symptom severity

Symptoms addressed: Activities of daily living, pain, functional mobility

Time to complete: 6-30 min

Number of items: 226

Completed by: Healthprofessional

Validation Publication: https://www.ncbi.nlm.nih.gov/pubmed/3686581

How to Access: http://www.neurophys.gu.se/sektioner/klinisk_neurovetenskap_och_rehabilitering/neurovetenskap/rehab_med/fugl-meyer/ (no open access)

 

Glasgow Coma Scale Extended(GOSE)

Area covered: Impression of the disease/QoL

Symptoms addressed: Activities of daily living, global outcome

Time to complete: 6-30 min

Number of items: 8

Completed by: Healthprofessional

Validation Publication: Wilson JTL, Pettigrew LEL, Teasdale GM. Structured interviews for the Glasgow Outcome Scale and the Extended Glasgow Outcome Scale: Guidelines for their use. Journal of Neurotrauma 1998;15:573-585.

How to Access: http://tbims.org/combi/gose (open access)

 

Multiple Sclerosis Functional composite(MSCF)

Area covered: Symptom severity

Symptoms addressed: Cognition, gait,  upper extremity function

Time to complete: 10-20 min

Number of items: 3

Completed by: Healthprofessional

Validation: https://www.ncbi.nlm.nih.gov/pubmed/10987899 

How to Access: http://main.nationalmssociety.org/docs/HOM/MSFC_Manual_and_Forms.pdf (no open access)

 

Scores

 

Hospital Anxiety and Depression Scale(HADS)

Area covered: Impression of the disease

Symptoms addressed: Depression, mental health

Time to complete: 5 min

Number of items: 14

Completed by: Healthprofessional

Validation Publication: https://www.ncbi.nlm.nih.gov/pubmed/6880820

How to Access: Available for purchase at MAPI Research Trust (no open access)

 

Movement Disorder Society sponsored Unified Parkinson’s Disease Rating Scale Revision (MDS-UPDRS)

Area covered: Symptom severity

Symptoms addressed: Activities of Daily Living, behavior cognition, functional obility, gait, ncontinence, life participation pain;

Time to complete: 6-30 min

Number of items: 4

Completed by: Healthprofessional

Validation Publication: https://experts.umich.edu/en/publications/movement-disorder-society-sponsored-revision-of-the-unified-parki 

How to Access: http://www.movementdisorders.org/MDS-Files1/PDFs/Rating-Scales/NewUPDRS7308final.pdf (no open access)

Scales

 

ALFFRS-R

Area covered: Disease severity

Symptoms addressed: Symptoms of ALS

Time to complete: 5 min

Number of items: 14

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication:

Cedarbaum J et al Journal of the Neurological Sciences 169 (1999) 13–21

How to Access: online

 

IPOS-NEURO

Area covered: Symptom burden

Symptoms addressed: Symptoms and qaulity of life

Time to complete: 10 min

Number of items: 8

Completed by: Healthprofessional or Patient

Formal qualification necessary: no

Validation Publication:

Gao W, Crosby V, Wilcock A, Burman R, Silber E, Hepgul N, et al. (2016) Psychometric Properties of a Generic, Patient-Centred Palliative Care Outcome Measure of Symptom Burden for People with Progressive Long Term Neurological Conditions. PLoS ONE 11(10): e0165379. doi:10.1371/journal.pone.0165379 E

How to Access: online

 

Seiqol

Area covered: Quality of Life

Symptoms addressed: Quality of Life

Time to complete: 20 min

Number of items: 5

Completed by: Healthprofessional

Formal qualification necessary: no

Validation Publication:

Hickey AM et al A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS
BMJ 1996; 313 doi: doi.org/10.1136/bmj.313.7048.29 (Published 06 July 1996)
Cite this as: BMJ 1996;313:29

How to Access: online

Scales

 

National Institutes of Health Stroke Scale (NIHSS)

Area covered: Symptom severity

Time to complete: 5 min

Number of items: 11

Completed by: Healthprofessional

Link to training resource: www.nihss-english.trainingcampus.net

Validation Publication: Brott T et al, Measurements of acute cerebral infarction: a clinical examination scale. Stroke. 1989;20(7):864-70.

How to Accesshttp://www.strokecenter.org/wp-content/uploads/2011/08/NIH_Stroke_Scale.pdf (open access)

 

Modified Rankin Scale (mRS)

Area covered: Degree of disability

Time to complete: <5 min

Number of items: 1

Completed by: Healthprofessional

Validation publication: Van Swieten J et al, Interobserver agreement for the assessment of handicap in stroke patients. Stroke. 19(5):604–607.

How to Access: http://www.strokecenter.org/wp-content/uploads/2011/08/modified_rankin.pdf (open access)

 

Montreal Cognitive Assessment (MoCa)

Area covered: Cognitive impairment

Time to complete: 10 min

Number of items: 8

Completed by: Healthprofessional

Link to training resource: www.mocatest.org

Validation Publication: Nasreddine ZS, Phillips NA, Bédirian V, Charbonneau S, Whitehead V, Collin I, Cummings JLC, Chertkow H. The Montreal Cognitive Assessment, MoCA: A Brief Screening Tool For Mild Cognitive Impairment. J Am Geriatr Soc 53:695–699, 2005

How to Access: https://www.mocatest.org/wp-content/uploads/2017/01/MoCA-New-Test-8.1-2017-04.pdf (open access)

 

Rapid Arterial Occlusion Evaluation (RACE)

Area covered: Large vessel occlusion screening

Symptoms addressed: Balace, functional mobility

Time to complete: <5 min

Number of items: 5

Completed by: Healthprofessional

Validation Publication: Perez de la Ossa et al, Design and Validation of a Prehospital Stroke Scale to Predict Large Arterial Occlusion. Stroke 2014; 45:87–91

How to Access: www.racescale.org/how-to-use/table/ (open access)

 

ABCD²

Area covered: Stroke recurrence risk after TIA

Time to complete: <5 min

Number of items: 5

Completed by: Healthprofessional

Validation publication: Johnston SC et al, Validation and refinement of scores to predict very early stroke risk after transient ischaemic attack. Lancet. 2007;369(9558):283-92.

How to Access: Original publication, Google (open access)

 

Risk of Paradoxical Embolism Score (RoPE)

Area covered: PFO-related stroke

Time to complete: <5 min

Number of items: 6

Completed by: Healthprofessional

Validation publication: Kent D et al, An index to identify stroke-related vs incidental patent foramen ovale in cryptogenic stroke. Neurology. 2013; 81(7): 619–625. 

How to Access: Original publication, Google (open access)

 

CHA2DS2-VASc score

Area covered: Stroke risk in patients with atrial fibrillation

Time to complete: <5 min

Number of items: 8

Completed by: Healthprofessional

Validation publication: Lip GY et al, "Refining clinical risk stratification for predicting stroke and thromboembolism in atrial fibrillation using a novel risk factor-based approach: the euro heart survey on atrial fibrillation". Chest. 137 (2): 263–72.

How to Access: Original publication, Google (open access)

 

HAS-BLED

Area covered: Risk of major bleeding in antiagulation

Time to complete: <5 min

Number of items: 7

Completed by: Healthprofessional

Validation publication: Pisters R et al, A Novel User-Friendly Score (HAS-BLED) to Assess 1-Year Risk of Major Bleeding in Patients with Atrial Fibrillation. Chest. 138(5):1093–100

How to Access: Original publication, Google (open access)

 

Barthel Index (BI)

Area covered: Impairment in activities of daily living

Time to complete: 5 min

Number of items: 10

Completed by: Healthprofessional

Validation publication: Collin C et al, The Barthel ADL Index: a reliability study. Int Disabil Stud. 1988;10(2):61-3.

How to Access: http://www.strokecenter.org/wp-content/uploads/2011/08/barthel.pdf (open access)

 

Scores

 

The Short Form (36) Health Survey (SF-36)

Area covered: Perceived patient health

Time to complete: 15 min

Number of items: 36

Completed by: Patient

Validation Publication: Ware JE, et al. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care. 1992;30(6):473-83.

How to Access: https://pdfs.semanticscholar.org/06cb/0076e310136d0ca8b56cc8585ec2bf43e029.pdf (open access)