The two European Reference Networks (ERNs) for Rare Neurological Diseases and Rare Neuromuscular Diseases (ERN-RND and ERN-EuroNMD) have launched a joint educational program in collaboration with the European Academy of Neurology.
The goal is to share knowledge on rare neurological, movement and neuromuscular disorders and fill the gap in the educational offer in these fields. Our target audience are clinical specialists (neurologists, pediatric neurologists, geneticists), neurology trainees and other paramedical staff involved in patient care.
The webinars will treat different aspects of the disease groups covered in our networks such as clinical features, disease diagnosis and management, use of scales and flowcharts, and possible therapeutic interventions. Topics relevant for adult and pediatric cases will have equal share in the curriculum.
For further information please visit:
Find Webcasts of the past Webinars here:
|26 January 2021, 3-4pm CET||Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers and Therapies||Günter Höglinger|
|2 February 2021, 3-4pm CET||Genetic dystonia and treatment||Sylvia Boesch|
|9 February 2021||Rare Disease Natural History Studies: Experience from the GNAO1 Natural History study in a pre and postpandemic world||Amy R. Viehoever|
|23 February 2021||Improving care for rare disease patients in Europe - Rare Disease Day 2021||Holm Graessner, Donna Walsh, Sophie Bernichtein, Tobias Mentzel|
|23 March 2021, 3-4pm CET||Frontotemporal dementia (TBD)||Harro Seelaar|
|13 April 2021, 3-4pm CET||MR Biomarkers in Spinocerebellar Ataxias||Gülin Öz|
|20 April 2021, 3-4pm CET||Approach to the patient with non-HD chorea||Ruth Walker|
|4 May 2021, 3-4pm CET||Better Conversations -Communication Partner Training for language led dementias||Anna Volkmer|
|18 May 2021, 3-4pm CET||Benign hereditary choreas||Kathryn Peall|
|15 June 2021, 3-4pm CET||Update Metachromatic Leukodystrophy||Samuel Gröschel, Ingeborg Krägeloh-Mann|
|6 July 2021, 3-4pm CET||Speech as a biomarker in ataxia: What can it tell us and how should we use it?||Adam Vogel|
|9 November 2021, 3-4pm CET||Clinical Outcome Assessments in Ataxias||Thomas Klockgether|