Through collective participation and collaboration, we will be able to provide a vital resource for neurologists and other clinicians to improve care for COVID-19 patients.
In this online repository you will find a copy of the:
- Registry Protocol
- A guide to the Case Report Form (CRF)
- Site Agreement
- Instruction guide on inputting cases
In the meantime, we would suggest that you begin the process of obtaining the required approval from your local ethics committee/board.
The site agreement should be signed by the authorised person at your institution and returned to us along with confirmation that the relevant ethics approval has been obtained for your region/institution (please send a copy of the ethical approval document).
The relevant sections to be completed by your institution are highlighted with comments. Please note that you are welcome to suggest changes to the site agreement. Please do so in the attached document. However, EAN cannot accept any individual agreements substantially different from this one. If you need a translation of the agreement, we can provide you with one.
Once we have received the signed agreement and confirmation of ethics approval, we can give you access to the online CRF right away.
You can notify us via email at: covidregistry(at)ean.org
If you require any further assistance or information, please do not hesitate to contact us.
We look forward to our collaboration and alliance in the fight against the COVID-19 pandemic.